Alzheimer’s Disease: The Importance of Minimizing Change


by Patricia M. McClure-Chessier

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June is Alzheimer’s and Brain Awareness Month—a time for people of all ages to get involved to fight against the disease. It doesn’t matter if you’re 5 or 95. One of the important facts that should be highlighted this month for anyone that is impacted by this disease is how change can have a tremendous impact on a person with Alzheimer’s or Dementia. The more prepared the family/caregiver is, the better.

The main underlying cause of memory loss and confusion is the progressive damage to brain cells caused by the disease. Sometimes your loved one may remember an important date about one person and not the other. Sometimes they may remember something significant about someone who they aren’t close to, but can’t remember something significant about the caregiver. There is no rhyme or reason in most cases. The human brain is very complicated, and the condition presents other challenges that scientists still cannot fully answer.

Your loved one may even lash out at the person taking care of them for no apparent reason, and the caregiver may not understand the precipitating factors. The person may get upset easily, use bad language, scream, or hurl insults. Your loved one might even throw things, or resist your care by pushing and/or hitting you. This behavior could be a symptom of the disease, or just a response to them feeling confused. Aggressive behaviors can be verbal or physical, occur suddenly, and could be the result of anxiety and/or confusion. While aggression can be very difficult to cope with, it’s important for you as the caregiver to understand that your loved one is not behaving this way on purpose. Behavior is a form of communication. Aggression can be caused by many factors, including physical discomfort, environmental factors, and poor communication.

Environmental factors play a huge role, but are often overlooked. Caregivers have to be careful with making changes in the environment. For example, modernizing a home could create some significant challenges for the person with Alzheimer’s. Changing from a rotary phone to a touch-tone phone could deter the person from using the phone. We have to give a lot of thought to upgrading microwaves, stoves, refrigerators, dishwashers, etc. Changes could have a negative impact on the person’s independence and quality of life. The more they can continue to do for themselves, the better. As caregivers, please consider the impact the change could have on your loved one. Even simple changes can complicate their world, and cause them to regress. So be careful and minimize change!

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Award-winning author/speaker Patricia M. McClure-Chessier, (MBA, MPA) is the author of Losing a Hero to Alzheimer’s The Story of Pearl and A Caregiver’s Guide for Alzheimer’s & Dementia Nine Key Principles. She has worked in the healthcare industry for 25 years and is available for presentations. For more information, visit www.patriciammcclure.com or contact Patricia at pmcclurechessier@yahoo.com or www.authorbookings.com/members/patricia-m-mcclure

Author Spotlight: Patricia M. McClure-Chessier


As an author, educator, healthcare professional, and speaker, Patricia M McClure-Chessier’s life reads like an individual who is very compassionate, caring, inspirational, tenacious, and industrious. Her passion for learning started when she use to play school with the children in the neighborhood, and her role was the teacher. Her love for writing developed through creative writing and poetry in grade school. She admits that writing is therapeutic and fulfilling for her. “I write because I want to preserve myself and leave my legacy in writing,” she says. Patricia’s first published book Losing a Hero to Alzheimer’s: The Story of Pearl was a first-place winner in the Aging/Senior Living and Relationships categories and an Honorable Mention winner in the Biography/Memoir category at the 2016 Royal Dragonfly Book Awards.

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Where did you grow up?
I grew up in the city of Chicago.

Did you read a lot as a child?
Yes! I loved to read as a child. Reading allowed me to expand my imagination. It also gave me a chance to escape from difficult situations going on around me.

What were some of your favorite authors and books?
My favorite books were the Box Car Children by Gertrude Chandler Warner, Beezus & Ramona by Beverly Clearly and The Adventures of Tom Sawyer by Mark Twain

What did you want to be when you grew up?
I always wanted to be a psychologist or a teacher.

Tell us about some of the jobs you’ve had before you became an author/writer?        
I have worked in the behavioral healthcare field for the past 25 years. After graduating with my Bachelors in Psychology from Eastern Illinois University, I worked in the capacity of a direct care provider, case manager, and director at a residential and vocational facility for people with intellectual disabilities and mental illness. As newlyweds, my husband Eric and I took care of my mother who had Alzheimer’s. Later I had children and went back to school to obtain my masters in business administration and masters in public administration, all while working as an Associate Clinical Director/Senior Leader at a behavioral healthcare outpatient organization. As time progressed, I made the transition to work as a Healthcare Executive Leader in Risk Management and Quality at a behavioral healthcare hospital. Throughout my career, I have written several articles for major newspapers and magazines. Additionally, I am an adjunct professor and teach college healthcare courses.

How did you get started writing?
As a small child I enjoyed writing, especially creative writing and poetry. One of my fondest memories was when I was 12 years old, I wrote a poem titled “He Say She Say” and entered it into a poetry contest for Ebony Jr. Magazine, and it got selected for publishing. My parents were so proud! Also, in grammar school and high school I was on the newspaper and yearbook committee.

Why do you write books?
Thus far, my books have been about my journey and experience caring for my mother who had Alzheimer’s. I want to persuade the readers to do the right thing, inform them based on my professional and personal experience all while entertaining them. I find sharing knowledge fulfilling because the information will be valuable to someone else. I believe we are all helpers to one another on this earth and I relish in doing my part! I want readers to understand how the disease affects the individual, caregiver, and family. I want them to be more equipped to handle the situation.  

What do you like best about writing?
Writing to me is magical! I can be free, transparent, and authentic. All of my writings thus far have been nonfiction. When I write, I start to relive the experience, and sometimes this can be good, but sometimes it can be depressing. Writing about my personal experiences is very therapeutic for me. If my past experience takes me to an emotional state, I know there is more healing that needs to take place. I write because I want to share my journey, love, experience, and highlight what God has brought me through.

What do you find the most challenging about writing?
Finding the time to write is always my biggest challenge! I live a very busy life and I have to manage my time wisely.

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Where do you get your inspiration?
I get my inspiration from my parents. Both of my parents spent valuable time with me. I had a special relationship with the both my parents. Their strengths and weaknesses complimented each other as parents. I believe I got the best of both worlds. Although both my parents are deceased, I get inspired from the legacy they left. Both my parents were goal-oriented, motivated, committed, loyal, and hard-working. My parents believed that I could do anything and convinced me that I could. My husband, children, and friends are a great inspiration to me as well. I also get inspired by watching other successful people. I gravitate towards autobiographies because I am always curious about the story behind the success.  

Tell us about your latest book
In A Caregivers Guide for Alzheimer’s and Dementia: 9 Key Principles, I share how being a caregiver for someone with Alzheimer’s or Dementia can be a stressful and a thankless job. The experienced caregiver will garner additional strategies to help prevent burnout and gain additional insight on how to handle challenging situations. The reader will learn to employ techniques with the person with Alzheimer’s/Dementia when they are noncompliant with active daily living skills or exhibiting unwelcoming behaviors. Additionally, it offers a unique perspective on how to be successful as a caregiver with a limited support system. Everybody can’t be a caregiver, but we can all participate in care giving! The 9 key principles will teach the reader how to survive this tumultuous journey and remain physically and mentally healthy.

What’s next for you?
I have been working on a screen play that I hope to have completed soon. I’m learning writing a screenplay from a book is more challenging than I realized. But I’m up for the challenge.

 

For more information on Patricia M. McClure-Chessier and her books, visit losingaherotoalzheimersthestoryofpearl.com.

 

November is Alzheimer's Awareness Month

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